21 September 2021
Children aged between 4 and 15 years old, who have or have had cancer, are invited to take part in a survey to find out what is important to them and what they would like future children’s cancer research to focus on.
Three versions of a survey for children and young people of different ages have been launched as part of the Children’s Cancer Priority Setting Partnership (PSP), funded by Children’s Cancer and Leukaemia Group (CCLG) and Little Princess Trust (LPT), supported by the James Lind Alliance (JLA).
The PSP aims to find out what areas of research need to happen to make the biggest difference to children with cancer.
Open until 31 December 2021, the surveys for each of the age groups 4-7, 8-12 and 13-15 are accompanied by an age-appropriate animation, developed by the partnership, to help children and young people understand what is being asked of them, while if a child needs help to fill in the survey, it is fine for someone else to help them.
Children and young people aged 4 to 15 years old, who have a brother, sister or friend with cancer now or who had cancer when they were younger, can also take part.
Find out more and complete the survey now at Children's Cancer PSP: Surveys for children and young peopleor find out more about the PSP project at www.childrenscancerPSP.org.uk
Ashley Ball-Gamble, CCLG CEO, said: “From the outset one of the aims of this project was to ensure children’s voices are heard throughout the process, and children’s priorities for future childhood cancer research are fed into the partnership.This set of surveys for children and young people will help us to shape the future of children’s cancer research in the UK.”
Susie Aldiss, Research Fellow (Child Health), School of Health Sciences, University of Surrey, and PSP Project Coordinator, said: “If your child, aged 15 or under, has had cancer, or has a sibling or friend who has cancer, we would like to invite them to take part in a survey to tell us what is important to them and what they would like future research about children’s cancer to focus on.
“Once the survey closes on 31 December, a prioritisation process involving a stakeholder group, guided by the JLA, will work through the responses from this survey, and previous surveys of adults including parents and healthcare professionals. They will then agree a list of top 10 research priorities and unanswered questions that will steer areas for future high-quality research to help tackle childhood cancer.”