Last updated: 16 January 2023
THE TRUST WILL WORK WITH YOUNG PEOPLE WHO FULFIL THE FOLLOWING CRITERIA:
- Are being/have been treated for a condition coded as cancer, a cancer like condition with a high burden of treatment, or have a bone marrow failure syndrome.
- Are a minimum of 8 weeks post completion of all dose-intensive, intravenous anti-cancer treatment at the time of the trip.
- Are currently in receipt of ALL maintenance treatment; being well-established on their maintenance phase and in a stable condition.
- Are currently in receipt of treatment solely with oral targeted inhibitor drugs, for example, Debrafanib, Trimetanib, Imatanib, Ceritinib, Regorafenib.
- Are without any significant toxicity of the above drugs. The Trust may need to further discuss this directly with you dependent on the individual drug(s).
- Must be able to self-administer any required regular injections.
- Have had their 8th birthday by the time they come on a trip (*exceptions may be made on a case by case basis for other Trust activity).
- Have been diagnosed before their 25th birthday. The upper age limit of 24 is flexible and each young person will be assessed on a case-by-case basis with the agreement of the CEO and Operations Managers.
- There is no limit to how far post treatment a young person is to be eligible.
- Must reside, and be eligible for free NHS cancer treatment, in the UK.
- Must be a minimum of 12 months post bone marrow/stem cell transplant and have started their re-immunisation process/have been advised by the treating team that they can return to work/school/college etc. We are happy to discuss this further if needed..
- Will be required to have a full blood count taken in the week before the trip, if they are in receipt of any treatment that carries a risk of neutropenia. These results must be: Neutrophils over 1.0, Haemoglobin over 80, and Platelets over 70.
- If in receipt of treatment with an oral targeted agent (such as those listed by example above or similar), the Trust would need to see a normal blood test (Full Blood Count) done within a month of the date of the start of the trip.
- For our yacht and outdoor adventure trips, a young person will need to have a movement range similar to/would allow them/you to get in and out of a bath independently for example and be able to wash and shower unaided. This is so you can access the yachts and take part, as much or as little as you want, in the activities. There are wheelchairs available, but we are currently unable to accommodate full-time wheelchair users on this type of yacht trip.
- For young people who are full-time wheelchair users, have very poor mobility, or require a high level of support from the staff, we run annual canal trips on fully accessible canal barges in partnership with CanalAbility. If you/your child are uncertain or have any questions, contact us to discuss individual requirements.
- Due to risks involved, young people who are pregnant would not be able to join the trip. We will do everything we can to get them on a trip in the future.
There is no limit to how far post treatment a young person is to be eligible.
If you are in any doubt about a young person’s eligibility, please contact the team at [email protected] on 01983 297750 (Isle of Wight) or 01475 672770 (Largs).
COVID VACCINATION AND TESTING
Our approach to COVID vaccinations and testing has changed for 2023. Please make sure you read our updated guidance by clicking here - Vaccination and Testing
© 2022 Ellen MacArthur Cancer Trust; all rights reserved.
Sign up to our newsletter