State of the System 

Children and young people with cancer need better support. We’re pulling together with Young Lives vs Cancer, Children's Cancer and Leukaemia Group (CCLG) and Teenage Cancer Trust to build a better future.

Building a better future

Our organisations work with children and young people with cancer. Every day we see the huge and lasting emotional, physical and financial devastation cancer often has.

In 2022, we joined forces with Young Lives vs Cancer, Teenage Cancer Trust and Children's Cancer and Leukaemia Group (CCLG) to commission a ground-breaking research project and be honest about what needs to change.

The result is the State of the System report, which focuses on the needs and wellbeing of children and young people with cancer and their families, and identifies the gaps in support and areas which need vital transformation.

From this research, we now have our North Star - a vision where:

"Every child and young person facing cancer receives care that’s tailored to them. They feel informed and in control, and along with their families can make knowledgeable decisions about their care and future.

"They feel empowered every step of the way, facing no gaps in support or barriers to access. They have everything they need from the beginning of their cancer journey, during treatment and for as long as they need it afterwards."

Together, we have the power to make it happen. Children and young people with cancer are counting on us.

Download the full report Read the CEOs statement

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Download the full report